What the HIPAA Privacy Rule Is For: Goals, Scope, Examples

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What the HIPAA Privacy Rule Is For: Goals, Scope, Examples

Kevin Henry

HIPAA

March 04, 2025

6 minutes read
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What the HIPAA Privacy Rule Is For: Goals, Scope, Examples

HIPAA Privacy Rule Goals

Protect health information privacy while enabling care

The HIPAA Privacy Rule creates a national baseline for Health Information Privacy that lets your information flow for treatment, payment, and health care operations while protecting it from unnecessary exposure. It balances access with controls so care teams get what they need—and only what they need.

Empower individuals with clear rights

The rule gives you enforceable rights to access, obtain copies, and request amendments to your records, to request restrictions and confidential communications, and to see an accounting of certain disclosures. Transparency through a Notice of Privacy Practices helps you understand how your data is used.

Limit use and disclosure through the minimum necessary standard

Outside of direct treatment, organizations must limit uses and disclosures to the “minimum necessary.” This principle, together with Authorization Requirements for non-routine uses, reduces unnecessary exposure of your Protected Health Information.

HIPAA Privacy Rule Scope

Who must comply

The rule applies to Covered Entities—health care providers that conduct standard electronic transactions, health plans, and health care clearinghouses—and to their business associates that handle PHI on their behalf. Business associates must follow the same confidentiality obligations via written agreements.

What information is covered

Protected Health Information (PHI) is individually identifiable health information held or transmitted by a covered entity or business associate in any form—electronic, paper, or oral. De-identified data and certain education or employment records fall outside the rule.

Where it applies

The Privacy Rule governs uses and disclosures within and between covered organizations and their partners. State laws that are more protective of privacy are not preempted, so entities must honor stricter state requirements where they exist.

HIPAA Privacy Rule Examples

Permitted without authorization (TPO)

  • A primary care doctor shares test results with a specialist to coordinate your treatment.
  • A clinic sends information to your insurer to obtain payment for services.
  • A hospital uses PHI for quality improvement, case management, or auditing as part of health care operations.

Permitted with authorization

  • A provider emails your records to a life insurer after you sign a specific authorization describing the purpose and scope.
  • An organization uses PHI for marketing a non–health plan product only after obtaining your written authorization.

Public interest and benefit

  • Public Health Disclosures to a health department about certain infections to prevent or control disease.
  • Disclosures to a medical examiner to identify a deceased person or determine cause of death.
  • Information shared with law enforcement to avert a serious and imminent threat to health or safety.

Protection of PHI

What counts as PHI

PHI includes data that identifies you—such as name, address, dates, contact details, medical record numbers, device IDs, full-face photos—when linked to your past, present, or future health, care, or payment. Psychotherapy notes get extra protection and usually require authorization for most uses.

Data minimization and de-identification

Entities must apply the minimum necessary standard for non-treatment purposes and use role-based access to limit exposure. Where feasible, data should be de-identified or shared as a limited data set under a data use agreement.

Respect for individual preferences

You may request restrictions, confidential communications (for example, at an alternate address), and facility directory opt-outs. These measures reinforce confidentiality obligations across care settings.

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Disclosure Permissions

Authorization Requirements

Authorizations must be specific, time-bound, and revocable, and are required for most marketing, the sale of PHI, and many research uses. The authorization must clearly describe the information, purpose, and recipients.

When authorization is not required

PHI can be disclosed without authorization for treatment, payment, and operations; when required by law; for public health and health oversight; for judicial and administrative proceedings; to law enforcement in defined situations; to organ procurement organizations; for certain research with an IRB or privacy board waiver; to avert serious threats; and for specialized government functions and workers’ compensation.

Individual access and timing

You have a right to access and receive copies of your PHI—often in the electronic form you request—within 30 days (with one permitted extension). Fees must be reasonable and cost-based.

Safeguards and Compliance

Administrative, physical, and technical Safeguard Standards

Organizations must designate a privacy official, train their workforce, implement policies, and apply physical and technical controls such as access management, audit logs, and secure transmission. These Safeguard Standards work alongside the HIPAA Security Rule for electronic PHI.

Business associate management and accountability

Covered Entities must execute business associate agreements that flow down privacy and security requirements, require breach reporting, and enforce sanction policies. Regular risk assessments and mitigation steps demonstrate ongoing compliance.

Documentation, transparency, and redress

Entities must maintain policies, acknowledge complaints, and provide a clear Notice of Privacy Practices. Accounting of certain disclosures, workforce sanctions, and mitigation of impermissible uses strengthen accountability and trust.

Conclusion

The HIPAA Privacy Rule safeguards PHI by setting clear limits on uses and disclosures, empowering you with actionable rights, and obligating Covered Entities and their partners to robust confidentiality obligations and safeguards. The result is practical privacy that supports care, payment, and operations without compromising your dignity.

FAQs

What types of information does the HIPAA Privacy Rule protect?

It protects Protected Health Information—any data that identifies you and relates to your health, care provided, or payment for care—whether electronic, paper, or oral, when held by a covered entity or its business associate. De-identified information and certain education or employment records are not PHI.

How does the rule empower individuals over their health information?

You can access, inspect, and obtain copies of your records (often electronically), direct records to a third party, request corrections, ask for restrictions and confidential communications, review an accounting of certain disclosures, and receive a Notice of Privacy Practices. You may also file complaints without retaliation.

When can PHI be disclosed without patient authorization?

Without authorization, PHI may be used or disclosed for treatment, payment, and health care operations; when required by law; for public health and health oversight; for judicial and law enforcement purposes within defined limits; to organ procurement organizations and medical examiners; for certain research with a waiver; to avert serious threats; for specialized government functions; and for workers’ compensation, subject to the minimum necessary standard.

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